Stone Soup Group Board Member, Matt Findley, explains how his son reached the lifetime cap imposed by his employer-based healthcare plan in less than two years. Hear one way Alaskans like his son who are living with a disability would be impacted by potential changes to healthcare. Thank you Matt for sharing your story!
My son Tyler turned 18 this month. With that came a whole new world called guardianship. What a weird feeling it was. Being in a courtroom. Sitting across the room from my son, who was sitting at a table with an attorney he just met. Answering questions and waiting for a judge to grant me…
The conference committee for the budget had their first meeting this week. It was an organizational meeting and no action was taken, but we expect legislators will begin acting soon. If you haven’t already, please take a few minutes to send an email, letter, or phone call to the legislators about the budget items (listed…
Opportunity to Comment on Draft of ESSA State Plan is Extended to May 28 The Department of Education and Early Development (DEED) is seeking public comment on the first draft of the state plan to implement the Every Student Succeeds Act (ESSA), the new federal education law. ESSA provides states with greater flexibility than the…
By Maria Pepperworth – Alaskan parent, advocate, rocker! Whenever people ask me about autism I like to use the word experience. My kids “experience” autism. In reality, our whole family “experiences” autism. It impacts the whole family. Autism is different in every person. It’s unpredictable, it’s difficult, it’s amazing, it’s a puzzle. If you would’ve…
FOR IMMEDIATE RELEASE CONTACT: Victoria Shanklin Communications and Outreach Manager victorias@stonesoupgroup.org Main: 907-561-3701 Direct: 907-792-3404 Special Education law and advocacy training coming to Alaska With the anticipated closure of Mount Iliamna Elementary and anticipated changes to our education system, there is no better time to bring the Wrightslaw Training to our state. Wrightslaw is a…
Having a child with a rare genetic disease or a lifelong disability opens your eyes up to a whole new understanding of how medical care, prescriptions, and insurance work. Before my kids, I thought I understood… You had insurance, you had a co-pay and a deductible, and you got the treatment and medication you needed…
The Trust is partnering with the Governor’s Council on Disabilities and Special Education, Alaska Association on Developmental Disabilities, and Senior and Disabilities Services to develop a shared vision to guide systems reform. This webinar is for families and communities on December 9, from 12- 1:30pm or one of our self-advocacy forums on December 7 from…
The Governor’s Council on Disabilities and Special Education 2016 Stakeholder Satisfaction Survey The Alaska Governor’s Council on Disabilities and Special Education (GCDSE) would like your ideas about how well the Council is doing its job. Results from this annual survey let us know how we are doing right now. We need your feedback so that…
