My Journey to understanding respite…

Nearly three years ago, all at once, my spouse and I became parents to three children, two of whom experience FASD. During the first year, we lived in an absolute dichotomous reality. The day was either good or, more frequently, hellacious. Nothing in-between. On good days, activities were predictable, routines went undisturbed, modifications were simple,…

Graduation Day!

Graduation Day. It’s here. After more than 15 years of school. A day filled with pride, excitement, anticipation…and relief. A day we were never sure we would have the opportunity to celebrate. There were no guarantees he would graduate. And, as with most things concerning Connor, he kept us guessing until the very last assignment…

My Guilt and its Impact on Caregiving

Susan Tanori is a mother of a daughter with autism and a Stone Soup Group Parent Navigator in Fairbanks, Alaska. Below she describes how a recent training she provided “became a confessional.” Read on to see how she opened up about some of the most difficult aspects of being a caregiver. Recently, I presented a workshop on “Caring for…

Welcome to the Stone Soup Group blog!

We are creating this space to share stories and spark conversation between our families and yours. We want this to be a safe, thoughtful, informative, practical connection for parents raising kids with special needs. As SSG’s Executive Director, I was asked to write the inaugural blog post. And, to be honest, I’ve procrastinated. I’ve started and stopped…