I always get questioned about what it’s like being a single mom raising two teenagers who experience autism. (technically the 18-year-old is considered an adult now). My answer is always pretty Learn More
parenting
What Healthcare Looks Like For My Family…
Having a child with a rare genetic disease or a lifelong disability opens your eyes up to a whole new understanding of how medical care, prescriptions, and insurance work. Before Learn More
Q & A: Finding community with a rare diagnosis
Jordyn Cleveland was born deaf. In 2013 her and her family found out why. At the age of 13, Jordyn was diagnosed with Usher syndrome a genetic condition that worsens Learn More
Brittney’s Story Continued…
The money: There are many factors that make living in Barrow with special needs unlike anywhere else. Basically, living here and having to seek medical professional help = EXPENSIVE Learn More
SCHOOL YEAR RAMBLINGS OF A MOM
It’s that time of year again. The mad rush begins! … I would love to sit here and type a blog that reflects a perfect and peaceful life, but that is not my actual reality.
Barbe’s Story – Part II
It was the holiday season of 1993 and Barbe was the single mother of 3 children, two daughters and a son, Christopher, who had Touretts, epilepsy, OCD, ADHD and Neurofibromatosis. Learn More
Barbe’s Story – Part I
So here I am pretending I know what I’m doing in writing a “blog”, and to be completely honest, I have no idea what I’m suppose to say. Nor have Learn More
Today we celebrate!
Not so long ago, just a few short years , on the first day of school, I sat in the parking lot of my son’s school sobbing my heart out as he started school. He experiences autism, and needs a very high level of support.
My Journey to understanding respite…
Nearly three years ago, all at once, my spouse and I became parents to three children, two of whom experience FASD. During the first year, we lived in an absolute Learn More
Graduation Day!
Graduation Day. It’s here. After more than 15 years of school. A day filled with pride, excitement, anticipation…and relief. A day we were never sure we would have the opportunity Learn More
