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Stone Soup Group

Supporting Alaskan Families who care for children with special needs.

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parenting

Single mom raising two teenagers who experience autism

July 17, 2017 By Tory Shanklin Leave a Comment

I always get questioned about what it’s like being a single mom raising two teenagers who experience autism. (technically the 18-year-old is considered an adult now). My answer is always pretty Learn More

Filed Under: Stories Tagged With: autism, parenting, school, teenagers

What Healthcare Looks Like For My Family…

February 1, 2017 By Tory Shanklin Leave a Comment

Having a child with a rare genetic disease or a lifelong disability opens your eyes up to a whole new understanding of how medical care, prescriptions, and insurance work. Before Learn More

Filed Under: Stories Tagged With: advocacy, Alaska, Alaskan Stories, BeAVoice, children with special needs, disability, family, family voices, healthcare, heath care, insurance, parenting, waiver

Q & A: Finding community with a rare diagnosis

July 22, 2016 By Megan Kelley Leave a Comment

Mandy Jordyn

Jordyn Cleveland was born deaf. In 2013 her and her family found out why. At the age of 13, Jordyn was diagnosed with Usher syndrome a genetic condition that worsens Learn More

Filed Under: Stories Tagged With: Alaska, caregiver, children with special needs, family, genetic disorders, parenting, rare genetics, special needs, story telling, Usher syndrome

Brittney’s Story Continued…

May 19, 2016 By Tory Shanklin Leave a Comment

The money:   There are many factors that make living in Barrow with special needs unlike anywhere else. Basically, living here and having to seek medical professional help = EXPENSIVE Learn More

Filed Under: Stories Tagged With: Alaska, down syndrome, family, parenting, rural alaska, school, special needs, story telling

SCHOOL YEAR RAMBLINGS OF A MOM

September 10, 2015 By Tory Shanklin Leave a Comment

It’s that time of year again. The mad rush begins! … I would love to sit here and type a blog that reflects a perfect and peaceful life, but that is not my actual reality.

Filed Under: Stories Tagged With: Alaska, back to school, children with special needs, Classrooms, IEP, parenting, school, special needs

Barbe’s Story – Part II

February 3, 2015 By Tory Shanklin Leave a Comment

It was the holiday season of 1993 and Barbe was the single mother of 3 children, two daughters and a son, Christopher, who had Touretts, epilepsy, OCD, ADHD and Neurofibromatosis. Learn More

Filed Under: Stories Tagged With: adhd, advocacy, Alaska, caregiver, family, guilt, parenting

Barbe’s Story – Part I

September 9, 2014 By Tory Shanklin Leave a Comment

So here I am pretending I know what I’m doing in writing a “blog”, and to be completely honest, I have no idea what I’m suppose to say. Nor have Learn More

Filed Under: Stories Tagged With: Alaska, caregiver, children with special needs, diagnosis, Epilepsy, family, parenting, special needs, stories, story telling, tourette's syndrome

Today we celebrate!

August 20, 2014 By Tory Shanklin 1 Comment

Not so long ago, just a few short years , on the first day of school, I sat in the parking lot of my son’s school sobbing my heart out as he started school. He experiences autism, and needs a very high level of support.

Filed Under: Stories Tagged With: Alaska, autism, children with special needs, education, family, first day of school, parenting, parents, school, special needs, story telling

My Journey to understanding respite…

July 25, 2014 By Tory Shanklin Leave a Comment

Nearly three years ago, all at once, my spouse and I became parents to three children, two of whom experience FASD. During the first year, we lived in an absolute Learn More

Filed Under: Stories Tagged With: adoption, Alaska, FAS, FASD, parenting, respite, special needs

Graduation Day!

May 23, 2014 By Tory Shanklin Leave a Comment

Graduation Day. It’s here. After more than 15 years of school. A day filled with pride, excitement, anticipation…and relief. A day we were never sure we would have the opportunity Learn More

Filed Under: Stories Tagged With: Alaska, autism, caregiver, education, family, graduation, humor, parenting, school, special needs, stories, story telling

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Let your voice be heard. Join various community opportunities and speak your mind about the issues facing children and youth with special needs and the families who care for them.

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