Training for Families Caring for Medically Fragile Infants Coming Home from the Neonatal Intensive Care Unit (NICU) Caring for a medically fragile little one can be scary. Providence NICU staff, Stone Soup Group and the Alaska Center for Resource Families are here to help. NICU staff will discuss feeding and digestion concerns, respiratory issues, discharge Learn More
Stone Soup Group Board Member, Matt Findley, explains how his son reached the lifetime cap imposed by his employer-based healthcare plan in less than two years. Hear one way Alaskans like his son who are living with a disability would be impacted by potential changes to healthcare. Thank you Matt for sharing your story!
Having a child with a rare genetic disease or a lifelong disability opens your eyes up to a whole new understanding of how medical care, prescriptions, and insurance work. Before my kids, I thought I understood… You had insurance, you had a co-pay and a deductible, and you got the treatment and medication you needed Learn More