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Stone Soup Group

Supporting Alaskan Families who care for children with special needs.

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Rare Disease Resources

    • Genetic and Rare Diseases Information Center (GARD): GARD is a program of the National Center for Advancing Translational Sciences (NCATS) to provide access to current, reliable, and easy to understand information about rare or genetic diseases in English or Spanish.
    • Genetics Education Materials for School Success (GEMSS): GEMSS is was developed by the New England Genetics Collaborative (NEGC), which became the New England Regional Genetics Network (NERGN) in June, 2017. Our goal is to promote awareness of and education about genetic conditions….
    • Global Genes: Global Genes’ mission is to connect, empower and inspire the rare disease community.
    • National Organization for Rare Disorders (NORD): NORD is a non-profit patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them.
    • Western States Regional Genetics Network (WSRGN): WSRGN is a federally-funded, multi-state project that seeks to increase access to genetic services and education for medically underserved populations. The participating states and territory are Alaska, California, Guam, Hawaii, Idaho, Oregon, and Washington.
    • EveryLife Foundation: The EveryLife Foundation for Rare Diseases is a 501(c)(3) nonprofit, nonpartisan organization dedicated to advancing the development of treatment and diagnostic opportunities for rare disease patients through science-driven public policy. The Foundation does not speak for patients, but instead provides the training, education, resources and opportunities to make patient voices heard. By activating the patient advocate, the Foundation believes it can change public policy and save lives.

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Parents & FamiliesParents & Families

Find assistance with school, health care or behavior related issues through Parent Navigation, or be connected with other families in similar situations.

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Training & EventsTraining & Events

If you are a parent, professional or youth with special needs, Stone Soup Group offers year-round activities and training to help you gain skills and connect with others in our community.

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CommunityCommunity

Let your voice be heard. Join various community opportunities and speak your mind about the issues facing children and youth with special needs and the families who care for them.

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Find a Provider

Find a Provider

Google will tell you who is in our community, but it can’t tell you whether other families would recommend them. We can help you find recommendations from other families, along with other details like what insurance plans are accepted.

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Stone Soup Group 307 E Northern Lights Blvd #100 Anchorage, AK 99503 · Directions and Map
Phone: (907) 561-3701 · Tax ID: 92-0149995
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