Pediatric genetic services – from diagnosis to specialized follow on services – are difficult to access in Alaska. Through 2018, there were at least four genetics clinics held in Alaska’s largest community of Anchorage. There is a current flux in whether or not pediatric genetic clinics will be held in Alaska this year and beyond, meaning Alaskan families may have to travel outside Alaska to access pediatric genetics professionals. Have you or a family member experienced this? There is a Medical Care Advisory Committee meeting on Dec 12 where you can share your story and help improve health outcomes for Alaskans. Meeting information is attached. The Committee will welcome public comments of Thursday, December 12, 2019, from 3:30 – 5:00 PM. Public comments may be made in person at the meeting location noted above OR via telephone by calling 1-800-315-6338 and entering the access code 55829#. Find more here:
notice_20191212
Leave a Reply