Stone Soup Group

Supporting Alaskan Families who care for children with special needs.

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Family Stories

Read or write and share with others. The stories shared in this space may be funny, heartbreaking, frustrating, or even ordinary. But they will all be real stories, from real families. Interested in contributing and sharing your story? Share A Story!

Adventure for Ava

Adventure for Ava is a Alaskan based non profit focused on helping families with special needs capture memories outside.

– CLICK HERE to see more stories! – https://www.avasstory.org/

Adventure for Ava 2020 Annual Report 

We served four families, delivering over over 400 photos to them. Producing four inspirational films receiving over 24k organic views, spreading stories of love and positivity. See what our families have to say about their experience and review more of the numbers behind our first year. Click on the button below to view the full annual report.

CLICK HERE to view the full report

 

Q & A: Finding community with a rare diagnosis

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Jordyn Cleveland was born deaf. In 2013 her and her family found out why. At the age of 13, Jordyn was diagnosed with Usher syndrome a genetic condition that worsens over time and will further affect her vision. In an effort to expand their support, Jordyn and her mother Mandy recently attended the Usher Syndrome Learn More

Brittney’s Story Continued…

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The money:   There are many factors that make living in Barrow with special needs unlike anywhere else. Basically, living here and having to seek medical professional help = EXPENSIVE and very nerve racking. We have been very lucky with my sister and her getting the medical help she’s needed. But we have also been Learn More

Brittney’s Story: Part 1

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Brittney Toalston is sharing her family’s story with us about what it is like to have a family member with special needs in rural Alaska. This story will be delivered in four parts. My family has lived in Barrow, 320 miles north of the Arctic Circle, for the last 29 years. My sister who is Learn More

Happy Holidays?

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By Kate Sondgerath, Health Information Specialist, Family Voices Indiana  Each year around this time, my husband and I get a little restless. While family and friends are excitedly planning for the upcoming holidays, we fret about them. Our parents may have had some inkling of anxiety about the holidays—but nothing like this. Having a child Learn More

Barbe’s Story – Part II

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It was the holiday season of 1993 and Barbe was the single mother of 3 children, two daughters and a son, Christopher, who had Touretts, epilepsy, OCD, ADHD and Neurofibromatosis. Because of her son’s serious health care issues he received Social Security benefits and Medicaid. That was until 3 months after Barbe worked two hours Learn More

Sensory Modulation & Santa

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Smelling cookies baking in the oven. Hearing Christmas carols being sung. Seeing bright lights flicker and flash throughout the community. Everyone knows that it is time for the holiday season! However, for many children, the things that evoke warm holiday memories in many of us are overwhelming. In July 2014, 1% of children in the Learn More