Stone Soup Group

Supporting Alaskan Families who care for children with special needs.

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Family Stories

Read or write and share with others. The stories shared in this space may be funny, heartbreaking, frustrating, or even ordinary. But they will all be real stories, from real families. Interested in contributing and sharing your story? Share A Story!

Q & A: Finding community with a rare diagnosis

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Jordyn Cleveland was born deaf. In 2013 her and her family found out why. At the age of 13, Jordyn was diagnosed with Usher syndrome a genetic condition that worsens over time and will further affect her vision. In an effort to expand their support, Jordyn and her mother Mandy recently attended the Usher Syndrome Learn More

Brittney’s Story Continued…

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The money:   There are many factors that make living in Barrow with special needs unlike anywhere else. Basically, living here and having to seek medical professional help = EXPENSIVE and very nerve racking. We have been very lucky with my sister and her getting the medical help she’s needed. But we have also been Learn More

Happy Holidays?

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By Kate Sondgerath, Health Information Specialist, Family Voices Indiana  Each year around this time, my husband and I get a little restless. While family and friends are excitedly planning for the upcoming holidays, we fret about them. Our parents may have had some inkling of anxiety about the holidays—but nothing like this. Having a child Learn More

Barbe’s Story – Part II

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It was the holiday season of 1993 and Barbe was the single mother of 3 children, two daughters and a son, Christopher, who had Touretts, epilepsy, OCD, ADHD and Neurofibromatosis. Because of her son’s serious health care issues he received Social Security benefits and Medicaid. That was until 3 months after Barbe worked two hours Learn More

Sensory Modulation & Santa

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Smelling cookies baking in the oven. Hearing Christmas carols being sung. Seeing bright lights flicker and flash throughout the community. Everyone knows that it is time for the holiday season! However, for many children, the things that evoke warm holiday memories in many of us are overwhelming. In July 2014, 1% of children in the Learn More

Barbe’s Story – Part I

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So here I am pretending I know what I’m doing in writing a “blog”, and to be completely honest, I have no idea what I’m suppose to say. Nor have I ever written “outside-the-box” (well, there was a couple poems for the magazine “Seventeen” many moons ago). People often ask me, how I got in Learn More