Stone Soup Group (SSG), was one of 20 organizations across the nation to be awarded a Global Genes Rare Capacity Building Grant. Global Genes is a national organization whose mission is to connect, empower and inspire the rare disease community. “SSG believes there may be 466 individual cases of rare disorders across Alaska. Navigating resources Learn More
Public Medical Care Advisory Committee Meeting
Pediatric genetic services – from diagnosis to specialized follow on services – are difficult to access in Alaska. Through 2018, there were at least four genetics clinics held in Alaska’s largest community of Anchorage. There is a current flux in whether or not pediatric genetic clinics will be held in Alaska this year and beyond, Learn More
Fall 2019 Newsletter
Public Testimony Opportunity
Governor’s Council on Disabilities and Special Education Early Intervention Committee Alaska’s Interagency Coordinating Council for Infants and Toddlers with Disabilities Public Testimony Opportunity Wednesday, November 20, 10:20-10:30am Public testimony opportunity: Share your experience with the early Intervention service system for infants and toddlers with disabilities in Alaska. You can provide your testimony over the phone Learn More
Notice of Regulatory Amendments on Day Habilitation Definition and Service Limits
The following Online Public Notice about proposed regulations amendments was issued on Thursday August 8, 2019. A separate Notice and E-Alert on the corresponding waiver amendments will be issued as soon as they are posted to the SDS webpage and available for review. The Department of Health & Social Services proposes to adopt regulation changes Learn More
Parent Conference 2019: An interview with Elizabeth Joseph
Elizabeth Joseph is a scholarship recipient who traveled from Kongiganak to attend the 2019 Annual Parent Conference: Transforming Challenging Behaviors into Meaningful Communication, to learn some useful information on how to manage the challenging behaviors of her two children. Stone Soup Group interviewed her following the 2019 Parent Conference. Here is what she had to Learn More
