FASD Family Support Project

Recommended Reading List For Parents and Professionals on Fetal Alcohol Spectrum Disorders (FASD) and Prenatal Drug Exposure

This information is provided as a service by the Stone Soup Group and is not intended to be a complete listing of all materials on this topic. When you find a book you feel would benefit other parents or professionals, please let us know by calling us at 561-3701.

I. FASD/Prenatal Drug Exposure: PARENT/FAMILY INFORMATION

Fetal Alcohol Syndrome: A Guide for Families and Communities. Streissguth, Ann Ph.D. (1997) Paul Brookes Publishing Co.
This book offers personal perspectives while revealing the physical and behavioral manifestations of FAS and includes results of a twenty year study on effects and outcomes for individuals with FAS/FAE.
Price/How to Order: $22.95. Call Paul Brookes Publishing Co. at 1-800-638-3775. Stock Number: 2835; ISBN 1-55766-283-5.

Reaching Out to Children With Fas/Fae: A Handbook for Teachers, Counselors, and Parents Who Live and Work with Children Affected by Fetal Alcohol Syndrome & Fetal Alcohol Effects. Davis, Diane. (1994) Center for Applied Research in Education.
Written for those who parent, caretake, teach or counsel children with FAS/FAE. Includes an overview of what causes FAS, how it is diagnosed and what characteristics are commonly seen in these children. It offers suggestions and hands-on techniques for establishing guidelines at home and school.
Price/How to Order: $27.95 (paperback) ISBN 0876288573

Recognizing and Managing Children with Fetal Alcohol Syndrome/Fetal Alcohol Effects: A Guidebook. McCreight, Brenda. (1997) Child Welfare League of America.
This guide offers practical advice and solid information on dealing with FAS/E's lifelong effects on behavior and learning. It covers the historical, medical, and social aspects of FAS/E, and details common behavioral characteristics associated with the condition. Taking a developmental approach, the guide offers specific behavioral management techniques to be used with children with FAS/E from infancy through late adolescence. Price/How to Order: $16.95 paperback. ISBN 087868607X

Fantastic Antone Succeeds. Kleinfeld, Judith and Wescott, Siobhan (1993). Fairbanks, AK: University of Alaska Press.
A collection of short pieces by families and educators about living with and educating children with fetal alcohol syndrome. A wide variety of views are expressed.
Price/How to Order: $20.00 plus $5.00 shipping and handling. Contact Fetal Alcoholism Parent Support Group, 9621 Glacier Hwy, Juneau, AK 99801.

Fantastic Antone Grows Up: Adolescents and Adults with Fetal Alcohol Syndrome. Kleinfled, Judith (editor), Morse, Barbara and Westcott Siobhan. (2000) Fairbanks, AK: University of Alaska Press.
This is a sequel to the book Fantastic Antone Succeeds. It provides a guide to life with an adolescent or young adult with FAS and other alcohol-related disabilities. Includes a compilation of articles with over 35 contributors.
Price/How to Order: $20.00 ISBN 1-889963-11-9. Contact University of Alaska Press, PO Box 756240, Fairbanks, AK 99775, phone (888) 252-6657; fax (907) 474-5502; email fypress@uaf.edu; web site www.uaf.edu/uapress.

The Broken Cord. Dorris, Michael (1989). New York, New York: Harper Perennial.
This was one of the first books written about FAS and chronicles a family that searches but does not find answers or solutions. The book was written by a father who adopted a child with FAS.
Price/How to Order. $15.50. Call Econo-clad Books at 1-800-255-3502.

Children with Prenatal Alcohol and/or Other Drug Exposure: Weighing The Risks of Adoption. Edelstein, Susan B. (1996) Child Welfare League of America.
Designed primarily for professionals, this book offers practical suggestions, recommendations, and food for thought for preparing, counseling and working with those who are considering adopting and infant or child who has been prenatally exposed to alcohol and/or other drugs.
Price/How to Order: $12.95 paperback. ISBN 0-87868-630-4

My Name is Amanda and I have F.A.E.
A book for young children with FAS/E.
This short and easy to read children’s picture book explores the joys and challenges faced by a young girl with FAE and her brother who has FAS. Simple line drawings.
Price/How to Order: $10.00. Contact FAS/E Support Network of B.C., 13279-72nd Ave., Surrey B.C., Canada, V3W 2N5 or via internet www.fetalalcohol.com.

Jaycee. McConnell, Nikki. Self Published.
This book was written by a parent of a child with FAS. She is involved in the Cowichan Valley FAS Action Team on Vancouver Island, BC,Canada. It is a story for children that includes information about FAS in an easy reading format.
Price/How to Order: $7.00 or write Nikki McConnel, 7430 Rosevear Road, Duncan, BC, Canada V9L 5Z8 or call (604) 746-4365.

II. FASD/Prenatal Drug Exposure: EDUCATIONAL/BEHAVIORAL INTERVENTION STRATEGIES

The Out-of-Sync Child Has Fun, Activities for Kids with Sensory Integration Dysfunction Carol Kranowitz, M.A. (2003) Perigee
by the author of "The Out of Sync Child", this new book is much easier to read, has many good activities and is also a great resource book.
Price/How to Order: PB Cost: $14.95 ISBN: 0399528431 Available from Amazon.com.

Recognizing and Managing Children with Fetal Alcohol Syndrome/Fetal Alcohol Effects: A Guidebook. McCreight, Brenda. (1997) Child Welfare League of America.
This guide offers practical advice and solid information on dealing with FAS/E's lifelong effects on behavior and learning. It covers the historical, medical, and social aspects of FAS/E, and details common behavioral characteristics associated with the condition. Taking a developmental approach, the guide offers specific behavioral management techniques to be used with children with FAS/E from infancy through late adolescence.
Price/How to Order: $16.95 paperback. ISBN 087868607X

Parenting Children Affected by Fetal Alcohol Syndrome: A Guide for Daily Living.
2nd Edition. Revised and edited by Sara Graefe. (1998) Society of Special Needs Adoptive Parents (SNAP). Vancouver, British Columbia.
This booklet describes the commonly observed characteristics of children with FAS/FAE. This is followed by suggestions from parents and professionals for addressing some of these difficulties by structuring daily living activities. Additional resources are provided so that the reader may ultimately find his/her own solutions that will work.
Price/How to Order: $10 Canadian + $3 shipping and handling. Contact The Society of Special Needs Adoptive Parents, 1150 - 409 Granville Street, Vancouver, British Columbia V6C 1T2. Phone (604) 687-3114 or email: snap@snap.bc.ca. ISBN 0-9698617-2-9.

Teaching Students with Fetal Alcohol Syndrome/Effects. A Resource Guide for Teachers. (1996) Prepared by Special Programs Branch, British Columbia, Ministry of Education, Skills and Training.
Price/How to Order: $13.50 Canadian. Call or write Crown Publications Inc., 521 Fort Street, Victoria, B.C. V8W 1E7 (250) 386-4636, email: crown@pinc.com. Order # RB0059.

Watch for Rainbows: True Stories for Educators and Other Caregivers of Children with Fetal Alcohol Spectrum Disorders. Dr. Frances M.E. Kapp and Dr. Kieran D. O’Malley.
Price/How to Order: $14.95 plus $5.00 for shipping and handling. Contact University of Washington, Dept. of Psychiatry & Behavior Fetal Alcohol Drug Unit, 180 Nickerson St., Suite 309, Seattle, WA 98109.

Working With Substance-Exposed Children: Strategies for Professionals. Puttkammer, Cordelia H. (editor). (1998) Therapy Skill Builders.
The editor has brought together a multidisciplinary team of specialists. Writing with authority, sensitivity, and compassion, these specialists relate their experiences and thoughts, and describe effective methods of managing and treating this complex and challenging problem.
Price/How to Order: $65.00 paperback. Call Therapy Skill Builders 1-800-211-8378. ISBN 0761647600.

Understanding the Drug-Exposed Child. Approaches to Behavior and Learning. Chasnoff, Ira J. M.D., Anson, Amy R. Ph.D., Iaukea, Kai A. Moss M.S. (1998) Chicago, Imprint Publications. This book is designed for teachers, parents, physicians, psychologists - for anyone who works with children. It is based on longitudinal research of prenatally exposed children and presents practical, research-based strategies for helping children reach their full potential in the classroom. This book presents behavioral management techniques that can help prevent problems in the classroom as well as manage specific problem situations.
Price/How to Order: $29.95 paperback. ISBN 1-879176-29-7

Understanding the Occurrence of Secondary Disabilities in Clients with Fetal Alcohol Syndrome (FAS) and Fetal Alcohol Effects (FAE). Dr. Ann Streissguth et al.
This report examines the types and magnitude of secondary disabilities that are associated with FAS and FAE. It also assesses risk and protective factors that influence the occurrence of secondary disabilities.
Price/How to Order: $5.00. Contact University of Washington, Dept. of Psychiatry & Behavior Fetal Alcohol Drug Unit, 180 Nickerson St., Suite 309, Seattle, WA 98109. Phone (206) 685-2903; Fax (206) 685-2903; email fadu@u.washington.edu or web site http://depts.washington.edu/fadu/.

Educating Children Prenatally Exposed to Alcohol and Other Drugs. Burgess, Donna M., Lasswell Sheryl L., Streissguth, Ann P. (1992) Fetal Alcohol and Drug Unit, University of Washington. Pamphlet sponsored by the Washington State Legislature to provide basic information about the effects, on elementary-aged children, of prenatal exposure to alcohol and other drugs.
Price/How to Order: Free of charge by calling (206) 543-7155 or writing to Fetal Alcohol and Drug Unit, University of Washington, GG-20, Seattle, WA 98195.

Fetal Alcohol Syndrome/Fetal Alcohol Effects: Strategies for Professionals. Malbin, Diane (1993). Center City, MN: Hazelton Educational Materials.
Written by a woman who is a recovering alcoholic, this book discusses the characteristics of FAS/FAE and the effects of FAS on the brain, learning, thinking, attention, and behavior. This is a good book for parents and for teachers and professionals who have not worked with individuals with FAS/FAE before.
Price/How to Order: $10.00 plus shipping and handling. Contact FASCETS, PO Box 83175, Portland, OR 97283, phone: (503)621-1271 or via internet www.fascets.org.

Trying Differently Rather Than Harder. Malbin, Diane.
Price/How to Order: $15.00 plus shipping and handling. Contact FASCETS, PO Box 83175, Portland, OR 97283, phone: (503) 621-1271 or via internet www.fascets.org.

Children of Prenatal Substance Abuse. Sparks, Shirley N (1992). San Diego, Ca: Singular Publishing Group, Inc. A comprehensive, informational, well-researched and easy to read book. The author presents an accurate profile on drug affected children and offers insights into the behaviors and problems faced by this population. This book contains a clear overview of the existing research. There are segments discussing addiction, treatment, prevention and current research.
Price/How to Order: $34.95. Call 1-800-521-8545.

Prenatal Exposure to Drugs/Alcohol. Soby, Jeanette M. (1996) Charles C. Thomas Pub. Ltd.
The author addresses the educational needs, successful learning environments and instructional techniques for children damaged by prenatal exposure to drugs. Physical, cognitive and behavioral characteristics are explained in layman's language for readers without a medical background.
Price/How to Order: $23.95 paperback. ISBN 0398064369.

FAS: Parent and Child. A handbook compiled by Boston University School of Medicine, Fetal Alcohol Education Program.
This 33 page handbook was developed to give parents a greater understanding of how to help their children manage his/her behavior. Each section contains answers to commonly asked questions as well as practical, parent-tested TIPS for behavioral and emotional development.
Price/How to Order: $7.50. Contact Fetal Alcohol Education Prog., Boston University School of Medicine, 7 Kent Street, Brookline, MA 02146 Call (617) 739-1424.

Guiding Our Children Beyond Risk: A Handbook for Caretakers of Prenatally Exposed Children. (pamphlet) Best, Laura (1993). San Francisco, CA: The Clearinghouse for Drug Exposed Children.
In this booklet the effects of drugs and alcohol on developmental stages are addressed. Strategies to assist with behavior, learning, impulsivity and other developmental concerns are suggested.
Price/How to Order: $4.00. Contact Clearinghouse for Drug Exposed Children,
1350 7th Avenue, Room 101, San Francisco, CA 94143-1131.

Handle with Care: Helping Children Prenatally Exposed to Drugs and Alcohol. Villareal, McKinney, Quackenbush (1992). Santa Cruz, CA: ETR Associates.
Cultural issues around drug and alcohol abuse are explored in this book. It also describes developmental stages of exposed children, how people learn and differences in learning in exposed children. This book also contains information about the kinds of substances kids may be exposed to including street drugs, explains assessments that may be used in evaluating exposed children, and lists national, state and local resources as well as further reading materials.
Price/How to Order: $17.95. Call 1-800-321-4407.

III. FASD/Prenatal Drug Exposure: PROFESSIONAL/SCIENTIFIC BOOKS

http://www.education.gov.yk.ca/publications.html
Links to Deb Evensen's project with the Yukon schools.
The new book for teachers is online.
(Click on "Making a Difference: Working with Students who have Fetal Alcohol Spectrum Disorders")

The Challenge of Fetal Alcohol Syndrome: Overcoming Secondary Disabilities. Streissguth, Ann (Editor), Kanter, Jonathan (Editor) (1997) University of Washington Press.
Experts describe how to help people with FAS and present a summary of findings and recommendations.
Price/How to Order: $17.95 paperback. ISBN 0295976500.

Fetal Alcohol and the Criminal Justice System. Conry, Julianne Ph.D. and Fast, Diane K. Ph.D.
Price/How to Order: $49.95 plus $5.00 shipping and handling. Contact BC FAS Resource Society, PO Box 525, Maple Ridge, BC, Canada V2X 3P2, phone: (604) 467-7102.

Fetal Alcohol Syndrome: Diagnosis, Epidemiology, Prevention and Treatment. Stratton, Kathleen (editor) Howe, Cynthia (editor), Battaglia, Frederick. (1996) National Academy Press.
Discusses diagnosis, surveillance, prevention, and treatment of FAS and other possible alcohol - related effects from a broad perspective. It includes several real-life vignettes of FAS children and adults.
Price/How to Order: $39.95 hardcover. ISBN 0309052920

Alcohol, Pregnancy and the Developing Child. Spohr, Hans-Ludwig & Steinhausen, Hans-Christoph (1996) Cambridge University Press.
Attempts to educate professionals about the impact of prenatal Alcohol exposure on the fetus, long term consequences for the child, and approaches to intervention.
Price/How to Order: $74.95 hardcover. ISBN 0 521 56426 3.

Perinatal Substance Abuse. Research Findings and Clinical Implications. Sonderegger, Theo B. (editor) (1992) The John Hopkins University Press.
Presents state-of-the-art data on several common drugs of abuse-alcohol, marijuana, cocaine, phencyclidine (PCP), amphetamines, and tobacco.
Price/How to Order: $95.00. Hardcover. ISBN 0801842751

Understanding the Occurrence of Secondary Disabilities in Clients with Fetal Alcohol Syndrome (FAS) and Feteral Alchohol Effects (FAE). Streissguth, A.P., Barr, H.M., Kogan, J. & Bookstein, F.L.,. Final Report to the Centers for Disease Control and Prevention (CDC) August 1996, Seattle: University of Washington, Fetal Alcohol & Drug Unit, Tech. Rep. No 96-06, (1996).
Price/How to Order: $5.00 donation to cover the cost of publication and shipping. Call, write or fax Fetal Alcohol and Drug Unit, 180 Nickerson, Suite 309, Seattle, WA 98109-9112
Phone: (206) 543-7155, fax: (206) 685-2903.

IV. FASD/Prenatal Drug Exposure: ALASKAN PUBLICATIONS

Fetal Alcohol Syndrome Guide to Prevention, Intervention and Services. State of Alaska, Department of Health & Social Services (1998).
Provides Alaska-specific information for diagnostic and intervention resources in addition to general information regarding FAS.
Price/How to Order: Free. Call Danise Podvin at (907) 269-3406 or L. Diane Casto at 1-800-478-2072.

V. FASD and Behavioral Issues

S0S: Help for Parents. (1996) Lynn F. Clark Ph.D., John Robb (illustrator). Parents Press.
Over 20 practical methods for helping children (2 to 12) are described. Parents learn methods for helping children to improve their behavior and receive basic techniques for aiding a variety of child personalities, from the stubborn and willful child to time-out basics.
Price/How to Order: $12.00 paperback. ISBN 0935111204.

Young Children's Behaviour: Practical Approaches for Caregivers and Teachers. (1999) Louise Porter. MacLennan & Petty PTY. Ltd., distributed by Brookes Publishing Co.
A highly practical, theory-based guide that explains more effective ways to prevent disruptive behaviors as well as methods to deal with episodes when they occur in a manner that safeguards the emotional needs and rights of everyone involved.
Price/How to Order: $32.95 paperback. ISBN 0-86433-143-6 Contact Brookes Publishing at (800)638-3775 or via internet http://www.brookespublishing.com. Stock #1436

VI. FASD and ADD/ADHD

Taking Charge of ADHD. Barkley (1995). Guilford Publications.
An excellent, comprehensive guide for parents of children with ADHD.
Price/How to Order: $16.95. Call 1-800-365-7006.

Parent Guide to Attention Deficit Disorders. McCarney and Bauer (1991). Columbia, MO: Hawthorne Educational Services.
This book offers practical guidelines and suggestions for dealing with everyday situations and problems that arise for parents of children with attention deficit disorder.
Price/How to Order: $13.95 paperback. Call Hawthorne Education Services at 1-800-542-1672.

The Attention Zone: A Parent’s Guide to ADHD. Cohen, Michael W. M.D. (1997) Bristol, PA: Brunner/Mazel.
Written by an experienced pediatrician who has worked with many families in understanding and developing successful interventions for children who experience ADD/ADHD. In addition, the author stresses the importance of involving children and students in their own treatment.
Price/How to Order: $21.95 Special order locally. ISBN 0-87630-860-4

C.H.A.D.D. Educators Manual. Fowler, Mary (1992) Fairfax, VA CASET Assoc., Ltd.
An in-depth look at attention deficit disorders from an educational perspective.
Price/How to Order: $12 from CASET Associates at 1-800-545-5583.

Note: Additional reading lists are available, please contact Stone Soup Group if you are interested in receiving them. Many, if not all, of the books on this list may be borrowed, free from the Anchorage School District Special Education Parent Resource Center (SEPRC) by calling 742-3872.
Books on this list that do not have ordering information included are available or may be special ordered from local bookstores such as: Barnes and Noble; Borders; Waldenbooks; or Metro Bookstore in Anchorage or via internet http://www.amazon.com.

Videos

A Mother’s Choice.
Price/How to Order: $148 Contact Gryphon Productions, PO Box 93009, 5331 Headline Drive, West Vancouver, BC, Canada V7W 3C0, Phone: (604) 921-7627.

Family Feathers: Social Development.
Price/How to Order: $40.00 plus shipping and handling. Contact Central Council Tlingit and Haida Indian Tribes of Alaska, 320 West Willoughby Ave., Suite 300, Juneau, AK 99801-9983.

Family Feathers: Guidance and Discipline.
Price/How to Order: $40.00 plus shipping and handling. Contact Central Council Tlingit and Haida Indian Tribes of Alaska, 320 West Willoughby Ave., Suite 300, Juneau, AK 99801-9983.

Family Feathers: Special Needs.
Price/How to Order: $40.00 plus shipping and handling. Contact Central Council Tlingit and Haida Indian Tribes of Alaska, 320 West Willoughby Ave., Suite 300, Juneau, AK 99801-9983.

Fetal Alcohol Syndrome: One Man Speaks Out
Price/How to Order: Contact NOFAS, 216 G Street, North East, Washington, D.C. 2002, Phone: (800) 785-4585 Fax: (202) 466-6456.

Journey Through the Healing Circle Series on Fetal Alcohol Syndrome. Video and book set.
Price/How to Order: $38.00. Contact Washington State Alcohol/Drug Clearinghouse, 3700 Rainier Avenue South, Suite A, Seattle, WA 98144.

Parent’s Journal: Preventing and Prevailing the Challenges of Fetal Alcohol Syndrome.
Price/How to Order: $35.00 plus shipping and handling. Contact Central Council Tlingit and Haida Indian Tribes of Alaska, 320 West Willoughby Ave., Suite 300, Juneau, AK 99801-9983.

Students Like Me.
Price/How to Order: $195.00 plus shipping and handling.
Order from Vida Health Communications, 6 Bigelow Street, Cambridge, MA 02139.
Call (800-500-7047) Fax (617) 864-7862 or via internet www.vida-health.com.

Worth The Trip. Produced by Vida Health Communications.
Presents strategies for meeting the developmental and behavioral challenges faced by children with FAS and the parents and professionals who care for them. This 57 minute video comes with a complementary guidebook written by Barbara Morse, Ph.D. and Lyn Weiner, M.P.H., Fetal Alcohol Education Program of Boston University School of Medicine.
Price: $155.00 plus $5.00 for shipping and handling (only personal checks or purchase orders are accepted). Order from Vida Health Communications, 6 Bigelow Street, Cambridge, MA 02149. Call (617) 864-4334 or Fax (617) 864-7862 or vial internet www.vida-health.com.

Newsletters

Fetal Alcohol Network Newsletter
Order from 158 Rosemont, Coatesville, PA 19320-3727

Family Empowerment Network/Pen (FEN/Pen)
Order from University of Wisconsin, Madison, 521 Lowell Hall, 610 Langdon Street, Madison, WI 53703-1195. (605) 262-6590.

Growing with FAS
Order from 7802 SE Taylor, Portland, OR 97215.

The Iceberg, a quarterly educational newsletter published by FASIS (Fetal Alcohol Syndrome Information Service).
Price: Subscriptions $10.00 per year for families, $15 for two years. To order, use form at end of this listing.

Society of Special Needs Adoptive Parents (SNAP) SNAP is a nonprofit organization that publishes a newsletter quarterly.
Order from SNAP 1150-409 Granville Street, Vancouver, BC V6C 1T2 Canada.
Call 1- 800-663-7627, fax (604) 687-3364 or email snap@snap.bc.ca.
Price: $25.00 Canadian for an Individual/Family membership.

FAS/E Newsletter
Price: $5.00 donation. Order from P.O. Box 74612, Fairbanks, AK 99707. Or call 456-1101 or 456-1053 in Fairbanks, or 1-800-770-KIDS.

FAS Times
Price: $12. Order from FAS Family Research Institute, P.O. Box 2525, Lynnwood, WA 98036, call (253) 531-2878, or e-mail Vicky@fetalalcoholsyndrome.org.

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