Stone Soup Group (SSG)
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Helpful FASD Links

 


DISCLAIMER: Links to organizations outside of Stone Soup Group (SSG) are included for information only. SSG has no control over the information at these sites. Views and opinions of these organizations are not necessarily those of SSG, the Office of FAS, or the Alaska Department of Health and Human Services (HHS).

Alaska State office of FAS



Manages the statewide federally funded grant providing for development of a wide range of training, services and support projects. A great place to find out what is going on in Alaska in the field of FASD. The office has a wide range of resource materials that may be checked out free of charge.
www.hss.state.ak.us/fas

Alaska State Division of Alcoholism and Drug Abuse

3601 C Street, Suite 358
Anchorage, AK 99503
Phone(907) 561-4213
http://health.hss.state.ak.us/dada/

The CDC FASD Website

www.cdc.gov/fasd 

The CDC has announced that they have update their wesbite with a new look and new content:

  • State alcohol consumption data for 2008
  • A video called, "The Story of Iyal." It gives an inside look at one family living with FASDs.
  • Easy-to-read information on diagnosis and treatments
  • Individualized pages for different visitors - women, families, healthcare providers, educators, and partners
  • Updated information on CDC activities

The Coalition on Alcohol & Pregnancy (Based in Canada)

Upcoming local, provincial and national FASD events
Ordering books, videos, and other FASD resources
FASD webcasts
Current and back issues of the CAP News
FASD FAQs
http://www.capmanitoba.ca/

Disability Resources



A nonprofit organization that monitors, reviews, and reports on information about legal rights, financial resources, assistive technology, employment opportunities, housing modifications, child rearing and educational options, transportation and mobility services, and more.
http://www.disabilityresources.org

Fetal Alcohol Services of Alaska



has a great series of brochures on FASD and the alcohol affected brain that may be downloaded and printed to share with others. The site also has very thought provoking sections on neuro-developmental and behavioral characteristics of individuals with alcohol related brain differences.
www.fasalaska.com

Governor's Council on Disabilities and Special Education

The council is responsible for planning, evaluating and promoting services to people who experience disabilities and students in Special Education. They work in collaboration with many other agencies and programs which deliver services to these populations. One of their most widely known products is the resource guide, Where To Turn. This guide is designed to help individuals and families locate resources that may be needed for children or adults that experience physical, emotional or mental disabilities. The listings include a variety of state and national agencies and organizations that offer direct services, information and referrals.
http://www.hss.state.ak.us/gcdse/Publications/Wheretoturn/wttindex.htm

Toward Inclusion: Tapping Hidden Strengths



This has a manual from the Manitoba Education and Youth Website, for developing student specific education plans for individuals who are alcohol affected. Designed as a planning resource for administrators, principals, classroom teachers, resource teachers, school counselors, clinicians, and other community professionals working with students that are alcohol affected.
http://www.edu.gov.mb.ca/ks4/specedu/fas/index.html

Minnesota Organization on Fetal Alcohol Syndrome (MOFAS)

this statewide collaborating agency includes a number of excellent resources including a "National Directory" of FAS resources in each state, and "Guidelines of Care for Children with Special Health Care Needs", an excellent online booklet for families and health care providers.
http://www.mofas.org

New Pamphlet for Post-Secondary Students with Disabilities

The Office for Civil Rights (OCR) in the U.S. Department of Education has prepared a pamphlet to inform students with disabilities about their rights and responsibilities and the responsibilities that postsecondary schools have towards them. This pamphlet explains the obligations of a postsecondary school to provide academic adjustments, including auxiliary aids and services, to ensure that the school does not discriminate on the basis of disability.
http://www.ed.gov/ocr/transition.html

NICHY



A national information and referral center that provides information on disabilities and disability-related issues for families, educators, and other professionals. Their special focus is children and youth (birth to age 22). Publications are available as well as links to other sites.
http://www.nichcy.org

Family Village



A wonderful online resource. There is a library with links and connections on disability related topics.
http://www.familyvillage.wisc.edu

International FASD Awareness Day



Every year at 9:09 am on September 9th, community activists around the world conduct events to raise awareness of the impact of prenatal alcohol exposure to individuals, families and communities. This site provides lots of information on getting activities going in your area of the world.
http://www.fasday.com/


PARENT SUPPORT




awareness post

Alaska Center for Resource Families 

Provides direct training, info on other training going on in the community, video and self-study courses, related to foster care and raising children. No charge for services. Materials available to any parent in Alaska. Links to other websites related to fostering/ adoption/raising children.
http://www.acrf.org/  

Anchorage School District Special Education Parent Resource Center

Provides a calendar of support group meetings hosted by the Center, upcoming trainings by center staff, a list of print and video resources that can be checked out free of charge, a community calendar, links to other education related websites and a bi-weekly electronic newsletter, the ASD Parent Line.
http://www.asdk12.org/depts/sped/programs/Other.asp

Casey Family Programs



Includes comprehensive information on the Indian Child Welfare Act, plus a link to the Casey Life Skills Assessment website, www.caseylifeskills.org, which provides an online life skills assessment for teens, as well as downloadable guides to help teach life skills to children and youth.

Casey National Center for Resource Family Support (CNC) offers extensive resource information to families who provide foster care, kinship care or adoption, and to agencies that offer foster care, kinship care and adoption services to children, youth and their families.
www.casey.org

Exceptional Parent



Parents and non-parent experts sharing advice and suggestions about parenting and education. Exceptional Parent is available as a print magazine, and as an on-line magazine now as well.
http://www.eparent.com

FAS Community Resource Center



An extensive and busy site developed by an Arizona parent, Teresa Kellerman. Large selection of articles on many topics related to FASD affected individuals of all ages. Also has leading researcher Dr. Ed Riley's presentation on the FAS brain available to download along with presentation notes and slides of the brain.
www.come-over.to/FASCRC

FAS/E Support Network of British Columbia (Canada)



Provides support and information to caregivers and service providers through a listserv, warm-line and training opportunities. They have published a variety of materials which may be ordered through their site.
http://www.fetalalcohol.com/frame-home.htm

FAS Family Resource Institute (FAS-FRI)



Has a wonderful quarterly newsletter (FAS Times), a warm-line, resource and referral information, and conducts trainings across the country for a wide range of audiences.
http://www.fetalalcoholsyndrome.org/

FASlink (Canada)



Home to one of the best known FASD listservs, contains lots of information, links, a downloadable "InfoDisk" containing "a large collection of practical articles on FAS which are of interest to parents, caregivers and those dealing with FAS issues in medicine, social work, education and justice" and more.
http://www.acbr.com/fas/index.htmpregnant lady fasd awareness

FAS Iceberg



Iceberg is a quarterly electronic educational newsletter on FASD (Fetal Alcohol Spectrum Disorders) from FASIS, a parent/professional partnership based in Washington State. This site has archives of newsletters previously published in paper format, information about upcoming events and resources available to families in the area. http://fasiceberg.org/

Our-Kids



A "family" of parents, caregivers and others who are working with children with physical and/or mental disabilities and delays.
http://www.our-kids.org

Prevention Institute



This website from Saskatchewan has a wide range of information on FASD and other health related topics. They have some very good TV and radio PSAs particularly on community and male responsibility as well as links to other useful Canadian sites. http://www.preventioninstitute.sk.ca/

Sensory Integration Network



The website of a grassroots parent project that has support groups and provides information for people working with or parenting children with sensory integration disorders.
http://www.SInetwork.org/

Stone Soup Group



A family-centered organization created to sustain the health and well being of Alaskan children with special health care needs. Program information on services and products, an on-line Resource Guide for families and care providers and links to developmental disability sites.
http://www.stonesoupgroup.org

Toolbox Parenting



A new evolving website providing ideas for families and professionals with strategies to work with kids and adults with tough & complex behaviors and other issues. The site also has a private social networking group with discussions and a blog.
http://www.toolboxparent.com


TRAINING

 


ARCTIC FASD Regional Training Center

www.uaa.alaska.edu/arcticfasdrtc

The Canadian Centre on Substance Abuse (CCSA)



Is a national agency. This site has a specific section on FAS/FAE with sections on training, resources, directories, events, and materials on substance abuse treatment, prevention and educational programming as well as links to a wide range of health, women's issues and substance abuse prevention sites. www.ccsa.ca

The Fetal Alcohol Syndrome Diagnostic & Prevention Network (FAS DPN)

is a network of five WA State community-based clinics linked by the core clinical/research/training clinic at the Center on Human Development and Disability at the University of Washington in Seattle, WA. Each clinic in the network uses the same interdisciplinary approach to diagnosis and the same systematic diagnostic method-the 4-Digit Diagnostic Code. The mission of the FAS DPN is primary and secondary prevention of FAS through screening, diagnosis, intervention, training, education and research. Over 70 interdisciplinary teams have been trained in Alaska, Arizona, California, Colorado, Hawaii, Idaho, Kansas, Kentucky, Montana, Michigan, Minnesota, New Jersey, Ohio and two Canadian Provinces (British Columbia and Alberta) http://depts.washington.edu/%7efasdpn/index.html

National Organization on Fetal Alcohol Syndrome (NOFAS)

provides national and community-based public awareness campaigns; a curriculum for medical and allied health students; training workshops for professional and lay audiences; peer education and youth outreach initiatives; and the NOFAS information, resource and referral clearinghouse.
http://www.nofas.org

group in rural alaska

Region 6 FASD


Contains downloadable training materials such as a FASD powerpoint presentation developed for training with Aboriginal groups in Alberta, archives of their monthly newsletter, resource information of use to those working with children, youth and adults affected by FASD, and links to a wide range of Canadian FASD websites. www.region6fasd.ca

RurAL CAP's Early Decisions Project



Has created eight individual prevention tools (four posters, one video, one teaching unit, one computer game, and one web site) for use by FAS/ARBD service providers, health care providers. The primary target population is sexually active women and girls of childbearing age who use alcohol. Their materials are available free of charge. www.earlydecisions.org


RESEARCH

 

Center for Disease Control (CDC)



National Center on Birth Defects and Developmental Disabilities (NCBDDD), information on FASD, surveillance and prevention projects, research, ordering information for publications and resources, information on the National FAS Task Force which makes recommendations that contribute to a national agenda for enhancing identification, intervention, and prevention of FAS and other prenatal alcohol-related effects.
http://www.cdc.gov/ncbddd/fas/default.htm

Fetal Alcohol Spectrum Disorders (FASD) Center for Excellence

Sponsored by the Center for Substance Abuse Prevention (CSAP), Substance Abuse and Mental Health Services Administration (SAMHSA). This web site offers information to individuals, families, and communities affected by FASD in an effort to improve quality of life. Also provides links to other projects designed to improve knowledge of FASD and promote best practices. http://fasdcenter.samhsa.gov

MotherRisk Journal of FAS International  



This site contains information on the impact of alcohol, tobacco and other substances on pregnancy and breastfeeding, e-learning modules on fetal development and FASD diagnosis, information on new research and live helpline counselors available toll-free via Skype from 9-5 EST. http://www.motherisk.org/JFAS/

National Institute on Alcohol Abuse and Addiction (NIAAA)

A branch of the National Institutes of Health has a wide range of materials in Spanish and English on prevention for teens, college age students, links to clinical trials and other research, medical databases, training and conference schedules and other resources.
http://www.niaaa.nih.gov/

University of Washington Fetal Alcohol Syndrome Diagnostic and Prevention Network



The mission of the FAS DPN is primary and secondary prevention of FAS through screening, diagnosis, intervention, training, education, and research. The WA State FAS DPN has expanded both nationally and internationally through the training of interdisciplinary teams. Over 80 interdisciplinary teams have been trained across the U.S. and Canada. Each clinic in the network uses the same interdisciplinary approach to diagnosis and the same systematic diagnostic method-the 4-Digit Diagnostic Code. http://depts.washington.edu/fasdpn/index.htm

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